This work was supported by Shalem Fund.
Aim of the study: To describe and analyze the experience of the aging ultra-Orthodox family alongside and with a person with developmental intellectual disabilities in home and out-of-home placement from an ecological point of view.
Method: In the qualitative study, 14 family units were sampled and various circles of belonging relevant to the aging family, were interviewed in depth.
Findings: Three themes emerged from the analysis of the interviews: The first theme was: "we have the strengths but we are tired": the challenges that the aging Ultra-Orthodox families, alongside and with a person with developmental intellectual disabilities, confront. The second theme was: ""it must be scaring to be like this…where are dad and mom?”: Finitude of life of parents in relation to a person with developmental intellectual disabilities in the Ultra-Orthodox context". The third theme was: "’Left rejects and right brings closer’: the ambivalent attitude in Ultra-Orthodox society towards aging families living alongside a person with an intellectual disability"
Conclusion: It is necessary to develop, for aging families with a son/daughter with intellectual disability in home and out-of-home placement, a customized and culturally sensitive social services.
For the Full text in Hebrew press here
For the English Abstract press here
People with intellectual developmental disabilities
Out of home placement
Shalem Fund study